June, 1997

When you receive this newsletter, I will be on my way to Portland, Oregon to find a site for a conference and will also be attending a conference in Vancouver, BC. I have just returned from the Philadelphia area where we are setting up a conference.

UPCOMING EVENTS: June 21st, Atlanta, GA. See April newsletters for speakers. Cost $45, $80 couples. Contact TDN @ (217) 352-8220 (Sandy) or (573) 445-8539 (Kathy)for registration information. TDN is inviting individuals and organizations to become active in a plan for change. Leaders are invited to join TDN in a meeting of leaders and interested parties on June 20th, 1997 from 4-7 P.M. at the Embassy Suites. There will be a summit to organize so our voices can be heard. Contact Sandy about this. If you are a leader and come from out of state, you will be able to attend the conference at no charge. Please attend if you can!!

July 19th, San Francisco, CA Conference at S.F. Airport Hilton. Invited speakers include: Dr. Linda Huang, Dr. Andrew Campbell, Dr. Britta Ostermeyer, Dr. Saul Puszkin, Sybil Goldrich (CTN), Jama Russano (CATS), Dr. Mary White Stewart, Dr. Marc Lappe, Dr. Raymond Press, Dr. Russell Wilson (Tulane Study). There will be an attorney panel. Not all speakers confirmed, but most are. Cost is $55 consumers or professionals, $80 couples if preregistered (postmarked by) by July 10 & includes a great lunch & coffee/tea breaks. Send registrations to Impart, Inc., P.O. Box 174, 3377 Deer Valley Road, Antioch, CA 94509. Registration at door will be $10 more for consumers and $15 more for couples. See registration form on back of newsletter.

August 16: Southern California Conference, Orange County Airport Hilton in Irvine, CA. Invited speakers include: Drs. Nir Kossovsky, Andrew Campbell, Britta Ostermeyer, Saul Puszkin, Marc Lappe, Ray Press, Aristo Vojdani, Robert Garry (Tulane Study) & Sybil Goldrich (CTN) & Jama Russano (CATS), more invited. Cost: $55 per consumer, $80 per couple preregistered (postmarked by) August 1. This includes lunch plus teas and coffees. After Aug. 1, cost will be $10 more for consumers and $15 more for couples. Send registrations to COSS, P.O. Box 129, Broomfield, CO 80038-0129 or contact Lynda @ (303) 469-8242, Fax (303) 466-4084. Visa/MC accepted for preregistration only.

Philadelphia, PA conference Oct. 4th, Airport Hilton, Registration 7:30, Conference 8 A.M.-5 P.M.. Cost $60 consumers & professionals, $85 couples if preregistered by Sept 20th, $10 more per person, $15 more per couple at the door. Speakers include Dr. Britta Ostermeyer, Dr. Saul Puszkin, Dr. Andrew Campbell, others pending. More information will be available in July or August newsletter.

Pending conference: Chicago, Sept. 20th. Location and speakers pending. More soon!!

Portland, OR, Sept. 6th (pending location and support from attorneys there). More soon!!

I am often asked why costs of conferences differ from place to place and from one organization to another. There are many reasons. Some conferences provide lunch and some do not. Some hotels charge more than others. Costs of mailings & preparation for the conferences may differ depending on how many mailings are sent out and how much support is given by local members and local professionals (bless those that help!!) We have to get the organizers to the conference area and pay their expenses while they are there. Sometimes the persons have to travel to the area twice to set up a function. For what consumers receive from these conferences, we think that they are reasonably priced. NO-ONE IS MAKING ANY MONEY PUTTING ON THESE CONFERENCES, even though some have been accused of doing so!! The last one I did I actually came out almost $200 in the hole (after accounting for all expenses, because my copy machine costs tripled from what I thought they would be. A $300 cartridge actually made 12,000 copies instead of the 21,000 it made the previous time. Also, I did not include some fax charges, misc. expenses, & never include gas and car expenses). I donated frequent flyer mileage points to get a speaker to one conference and will probably do it again (soon) to help out. Please do not criticize the groups that put on these conferences!! We need your help!!! We are trying to do this to help the consumers. If you have a problem with this, contact the person(s) putting on the conference for an explanation. If you are criticizing our group leaders, shame on you!! They give their time, their energy, their money and their dedication to this cause! What are you giving??

LEGAL INFORMATION: On April 7th, Dow Corning moved to separate breast implant claims into two categories: 1) Those based on autoimmune diseases and 2) Those involving ruptures and local complications. That is when you received the omnibus objections to the breast implant claims. Hazelton of Dow Corning stated that these motions were based on scientific evidence from other courts that disprove claims that breast implants cause disease. Judge Spector has not ruled on DC's motion. DC also requested a hearing to designate Judge Pointer of Alabama as a special judge to sit on the Sixth Circuit. According to what we have been able to find out, these are delaying tactics by DC and are designed to frustrate BI consumers and their attorneys and make them give up and go away. It is working well, especially with attorneys.

A hearing has also been held to decide whether Dow Corning has exclusive rights to determine their reorganization plan. The debtors may not file a plan as long as DC holds exclusive rights to do so. The hearing was April 16th and arguments were heard on May 1st. The judge refused to hear the debtor's plan and has had no response on DC's plan.

Judge Sam Pointer has reinstated Dow Chemical as a federal defendant in the multidistrict litigation. Dow Chemical's protestations that thousands of claims against them have been dismissed is pure posturing. 3 claims against them have been dismissed, all being appealed. Warnings that date back to the 1950's including internal research by both Dow Corning and Dow Chemical indicate that silicone gel used in breast implants was biologically active. Three cases have gone to trial against Dow Chemical, including the Texas one in which the verdict has been set aside and is in limbo, the Nevada (Mahlum) case in which the State Supreme Court has heard the appeal of our win and has not yet responded, and the current Spitzfaten Class Action in Louisiana. Dow Chemical's removal from a case in California is being appealed to the state Supreme Court. In Louisiana, Judge Yada Magee has found sufficient evidence to proceed on the plaintiffs' claims of fraud, conspiracy, negligence, responsibility for the product and aiding and abetting in the development of a harmful product. (Yah, Judge Magee!!) She has also ruled that, under Louisiana law, Dow could not be held liable for product warranty, but could be potentially liable for involvement in early safety testing.

Dow Chemical was dismissed from all Michigan Breast Implant Cases and this decision is being appealed. This decision has been upheld in the Appeals court. This one will no doubt end up in the U.S. Supreme Court for a decision.

We had one small win ($35K). In N.M. (Duke v. 3M), the Judge denied the defendants' (3-M and McGhan) motion to exclude every one of the plaintiff's experts (Pierre Blais, Saul Puszkin, James O'Donnell, Eric Gershwin). Defendants had tried to use Daubert vs. Merrill Dow Pharmaceuticals as the basis of the appeal. The Judge ruled that the focus should be on the validity and soundness of the scientific method used to generate the evidence and not just whether it had gained general acceptance within a particular field (another wise Judge).

Meanwhile, Baxter (Heyer-Schulte implants) has filed for a summary judgment on two claims (Pennsylvania Court). These two are that there was a common plan to prevent public awareness of the hazards of breast implants (does anyone doubt this??) and for conspiracy and concert of action. Plaintiffs in the action state that Baxter has no authority to file a summary judgment motion.

3-M is fighting probes into its divestitures. They argue that they should not be compelled to turn over documents on divestiture of some of their product line because the documents are of a highly sensitive, confidential, proprietary financial nature and that these transactions are irrelevant to breast implant litigation. They also state that it would be overly burdensome for them to comply with this request.

Whatever happened to GE as a defendant? I understand that they made the gel for many implants, including most if not all of the pre 9/7/86 Surgitek implants. Why are they not among the defendants in the class action or in individual suits? If they are being sued, please inform me of when and where!! Women are asking!!

A Federal District Court in Idaho allowed a woman to amend her complaint against Bristol-Meyer-Squibb and ask for punitive damages. In granting this request, the Judge ruled that there was enough evidence that the testing and marketing of silicone breast implants was oppressive, fraudulent, wanton, malicious or outrageous and that the inclusion of punitive damages would not result in undue prejudice to the defendants. Med. Eng. and Dow Corning are also defendants in this lawsuit (Taylor vs. Surgitek, Inc. and other defendants).

CUI (Cox-Uphoff Implants) consumers: It is unclear whether the Judge will allow or grant a Mandatory Class Status as this has been under a pending motion since August, 1966. CUI claims to have no money (don't you just feel sorry for them???) Be sure to opt-out of the class action if you only had CUI implants as that gives you 6 months before your statute of limitations begins to toll. Finding an attorney to handle these cases has been virtually impossible. We all hope that Judge Pointer will create a class action settlement for women who have been victimized by implants from this company and/or will file an order dealing with statutes of limitations regarding women with these implants. File a complaint directly with CUI (be sure to include your proof of manufacturer and proof of rupture) after you opt-out of the class action. Meanwhile the one lawsuit that moves forward against this defendant (California) has not yet reached a trial date.

More on attorney's charges!! They cannot charge you extra for faxes or copies or anything but a doctor's lien over the 10% ($10,000 and under) or whatever percentage is listed in the class action (maximum 23% of $100,000) if your settlement is from the MDL or from Mentor/Bioplasty. Any charges over the listed percentage should be reported to Judge Ann Cochran, Claims Administrator, MDL 926, P.O. Box 5666, Houston, TX 77256. Send a copy of the attorney's accounting & include the attorney's name, address & phone #. As I said before, if the attorney refuses to make an accounting (an itemized statement), report that to your state bar association and to Judge Ann Cochran.

MEDICAL INFORMATION: A new method for detecting silicone and its concentration in animal and human tissues has been discovered by Dr. Russell Lebovitz of Baylor College of Medicine (Houston). This study was published in the April issue of Analytical Chemistry so should meet the criteria set out in Daubert v. Merrill Dow Pharmaceuticals. A gas chromotograph permits scientists to identify silicone, an atomic emitter is used to determine the amount of silicone and a mass spectrometer is used to determine the kind of silicone. Dr. Lebovitz says this is the first step in a process that will determine if women with silicone B.I. and patients with other medical silicone devices are suffering from problems caused by silicone migration. (Hang on folks, the science is beginning to catch up with our illnesses!!)

INOSITOL, also called myo-inositol. What is it and what does it do? Inositol is a B Vitamin, somewhere between Vitamin B6 and B12. It is available from natural or synthetic sources & is not a prescription drug. Inositol plays a role similar to choline in helping move fats out of the liver. No RDA for this vitamin has been established.

What does it do? Many women have claimed that they feel much better on this vitamin. They state that they have more energy and that they feel much healthier. Some ways Inositol may be helpful: It may protect against cardio-vascular disease. It may protect against peripheral neuritis that is associated with diabetes. It may protect against hair loss as it helps to maintain healthy hair function. It functions as a mild anti-anxiety agent. It can help control blood cholesterol. It promotes the body's production of lecithin. It has stimulating effects on the muscular action of the alimentary canal, so helps with constipation. It can be depleted in anyone who drinks heavy caffeine products (coffee, tea, colas, sodas, etc.). Some animals have been shown to be deficient in Inositol. Human tests are being developed. Inositol forms an important part of phospholipids which are compounds manufactured in our bodies.

If you have major liver problems or gall bladder problems, consult your doctor before taking Inositol as the silicates the body sheds (from taking Inositol) will go through your liver. Don't take this vitamin if you are healthy, over 55 and healthy or if you are pregnant and breast-feeding and healthy. If unhealthy and these conditions apply, consult a doctor. If you have diabetes with peripheral neuropathy, consult a doctor. There is no known interactive effect on lab tests. No study on children's benefits have been done.

See flyer from NEEDS at the back of this newsletter for a great price on Inositol.

A study published in a recent issue of Obstetrics & Gynecology concluded that 64% of new mothers who had breast implants had an inadequate supply of milk and were therefore slower to breast feed. Only 10% of new mothers generally have problems with their milk supplies. This information is from Medical-Legal Aspects of Breast Implants, April 1997.

If you drink grapefruit juice (or eat a lot of grapefruit), don't drink it with medications as it can have severe consequences such as quintupling the effects of many medications (increasing the potency as much as 5 times), especially blood pressure pills and antihistamines. It may affect other drugs.

Research has shown that persons with fibromyalgia have more substance P in their spinal fluid than other persons. Substance P is a neuropeptide that carries pain signals. Often people with fibromyalgia have diminished blood flow so they have less functional activity in the brain in the areas where pain signals are alleviated. In other words, they have a pain filter that is dysfunctional. The very best therapy may be moderate, regular aerobic exercise, even though pain may result and you may have to work through that pain. Exercise creates more endorphins in the brain and this helps the body to not feel pain. Exercise also brings more blood flow to the muscles, and this can help relieve pain. Many people may have to start moving gradually because they have had so much pain they have simply quit moving. Exercise will increase the ability to sleep as well as improve the condition in the long-run. Exercise may also initially make the pain worse and NSAID's (tylenol, aspirin, etc.) can be taken for short periods of time to alleviate this extra pain. Long term use of pain-killers will eventually worsen the problem because it prevents the natural pain-killing endorphins from being produced. Narcotic pain killers should not be utilized for this condition. Tri-cyclic anti-depressants can be helpful, but avoid newer ones like Prozac, Zoloft, etc. (By the way, a safe alternative to those taking Prozac may be St. John's Wort, available at health food stores.) Hot tubs and spa's may be helpful. Relaxation techniques can be helpful. Avoid doctors that do not believe in fibromyalgia. This condition is real and has a biological basis!!

ALTERNATIVE MEDICINE: Do you have ugly, blue, dilated veins in your legs? Try butcher's broom, an ancient plant that contains ruscogenin and neuroscogenin, two natural plant steroids that seem to narrow dilated blood vessels. This product also contains an anti-inflammatory agent that soothes the inflammation around those veins.

I have found an added benefit of being off the prescription for my sleep disorder (made possible by my magnetic mattress). My natural killer cell activity is increasing as is my natural killer cell level. The anti-depressants we use for our fibromyalgia (which went away with the sleep system also) and sleep disorders can suppress our immune systems. Apparently mine was being suppressed.

INFORMATION AVAILABLE: Tulane Study: Use of Antipolymer Antibody Assay in Recipients of Silicone Breast Implants. For copy of study, send $2 & SASE to COSS.

IMPORTANT: I speak to many women and I am often astounded (and frustrated) to find the number of women looking for a magic pill to cure their disease(s). Many are still running from doctor to doctor looking for that one thing that will make them feel better. All too often women are smoking cigarettes and using alcohol, drinking coffee (the most heavily pesticide laden product in the world) and using sugar heavily in their diets. The sodas I see being consumed by many women would put me under the table. Peanuts are laden with pesticides so that is another thing I see many women consuming. I am alarmed with the unwillingness of women ill from breast implants to take charge of their lives and get the chemicals, food additives and pesticides out of their diets. We will never recover until we realize the importance of avoiding environmental toxins and becoming educated consumers about the foods we eat and the cleaning products we use. You are what you eat!! If you eat junk, your body will not heal. If you avoid good nourishment and good nutrition (including good food supplements), you will pay the price. The only women I see who are getting better are the ones that are doing what I have done. At our Reno conference, Colleen Swanson shared the same advice. Many of our group leaders have realized the tremendous benefits of alternative medicine including basic nutrition.

BOOKS: Are you too sick to work? Have you tried everything to make a living and been unable to function for more than a day, a week, etc. without becoming much worse. Have you thought of applying for Social Security Disability (SSD) or Supplemental Security Income (SSI)? If you did not work 5 of the last 10 years before you became disabled, you may apply for SSI. For SSI (only), you cannot have any source of income (spouse, trust fund, relatives) or own a lot of property (not a problem for many of our women), but it is an alternative for some. You can receive Medicaid and later Medicare when you receive SSD or SSI and this pays for removal of implants as well as medical costs. For an informative book on how to apply and what you need to do, send $14.00 to COSS and ask for the SS Book. It can save you a major amount of effort by knowing just what to do and what records to collect. Don't suffer quietly because of pride!! These funds are out there for people who are too sick to work! We deserve them when we are ill and cannot survive without funds!!

Remember, we have many books in stock that may help educate you, your family, your friends, doctors, etc. Many are less expensive than at book stores. Most are not available at bookstores. Books we have include: Silicone Breast Implant Controversy, Dr. Frank Vasey ($12); Betrayed, Gloria Bywalec & Anne Marie Rzeppa ($18); Torn Illusions, Pamela Kendall ($20); Silicone-Gate, Dr. Henry Jenny ($20); Breast Implants: The Myths, the Facts, the Women, Ilena Rosenthal ($10); Informed Consent (paperback) John Bryne (the story of John & Colleen Swanson) ($15); etc. We also have an excellent book that explains the Immune System ($12). All the above are priced including postage. We accept Visa/MC for orders of $25 or more.

PRODUCTS AVAILABLE: Sun-sensitive persons: For a free catalog of clothing that blocks 97% of the harmful UVA and UVB rays of the sun, call (800) 882-7860. The company's name is Solumbra.

Fungal problems? Do you have itchy ears, rectal itching or vaginal infections, thrush (fungus in your mouth)? Do you crave sugar? Are you always craving white starchy foods instead of healthy whole grain choices? Do you constantly have a fuzzy brain along with the diet of sweets? If you answered yes to these questions (any of them) you may indeed have a fungal problem. I took Diflucan for 3 months (twice) and it just did not take care of the problem. Since I have been on coral calcium (and have raised my pH level by 10 points--from 5.5 to 6.5), I have had less of these problems than I have had in the last five years. C-Max is another product that helps with fungus. Call or write me for information on these wonderful products. Check the last few newsletters for some information also.

Would you do anything to lose weight? Have you even considered Redux or the fen-phen prescription drugs that your doctor can give you even though people have died from them? Have you ever considered natural alternatives? Try Key-to-Sun (Chitosan), a product that is all natural fiber and can actually lower your cholesterol as well as being a fat-magnet, attracting and carrying fat (undigested) out of the body, or, try The Patch (trans-dermal, time-released), an alternative health care product (all natural, no additives) that is safe and has shown great effectiveness in Europe. It contains Fucus vesiculosus L. (a form of seaweed) and comes with a spray that you can use (under your tongue) to instantly stop cravings. It is called The Patch.

In Europe, studies showed that the average weight loss, with a controlled diet, was 2.28 lb. per wk. Without the herbal preparation, it was 1.11 lb. per week. Weight loss doubled with the use of this product. How does it do it? It speeds up the body's metabolism to a point where the body can successfully burn existing fat and limit future fat storage. In a recent study at the University of Maryland, 111 men (ages 46-80) who were sedentary and obese were used as test subjects in a study done to determine the health effects of weight loss vs. exercise on obesity. The most significant benefits were found in the group that had only weight loss. Their cholesterol was lower, blood pressure was lower and blood sugar levels dropped. The Patch helps with the all day problems of wanting to eat. The spray immediately helps stop cravings. All you need is the willpower to use it instead of reaching for that Haagen Daas, those potatoes or that chocolate. It is not healthy to be overweight. It drains our energy, strains our hearts and blood systems and strains our budgets.

Call Lynda for details on these products. Help yourself and help others by finding out about The Patch, a great new idea. (It has been so successful that they are a month behind on making shipments of these products.) The first shipment arrived in the U.S. April 10th, 1997. It is brand new here and already in the news. It was designed & approved by the Fortune 500 Company that manufacturers the nicotine patch. This wonderful product offers a great opportunity to make money as well as lose weight as many people in our society are a little over what is considered healthy weight.

THIS MONTH'S POEM: This is a poem I wrote in 1990 when struggling with breast cancer. This was before I knew how much I would struggle with breast implants.

CANCER

by Lynda Roth

Of all the words I've ever heard
And all the horrors I have faced
The one that stopped me in my tracks
Is the one I most recently faced.

Cancer! The word strikes fear
Into the heart of anyone
It makes the strongest person cringe
For their body to become

Inflicted with this dread disease
With no warning of it to come
And no way to ward it off
It came so unaware
I was not prepared
To plan a course and find a way
To fight this cancer I now had
And figure out how best to give
Myself a chance to live.

For I looked deep into myself
And knew that I could win this war
By facing battles one by one
Not letting cancer up the score.

I am healing in my soul
My body has strength anew
The cancer soon will be gone
My spirit is healing too.

For I have willed my health to stay
And allow me time for better days
And love myself and grow inside
And heal the cancer that has come
Because I was too stressed to see
What I had let become of me.

And I am sure that I will heal
Because inside of me I feel
The destruction of the cancer cells
Now I know I'm getting well.

If I had only known that cancer was just the beginning of my battles. The breast implant did so much more damage to me than the cancer ever did!! I was just beginning to fight! I have never stopped!!

PREVIOUS NEWSLETTER INFORMATION: Previous issues of newsletters available: $2 each U.S., $3 Foreign. 1/93 is the first available issue. Please indicate months' desired and proper sums. Some covered subjects: Auto-immune 1/93; Fibromyalgia 2/93; Medical Testing 3/93; Sjogren's 4/93; Vasculitis 4/93; Arthritis 5/93; Chronic Fatigue 6/93; Lupus 7/93; Irritable Bowel Syndrome & Inflammatory Bowel Disease 8/93; Insurance 8/93, 9/93; Misc. Med. Info. 9/93; Multiple Sclerosis 10/93; Spasmodic Torticollis 10/93; Hypoglycemia 11/93; Antibodies 12/93; Reflex Sympathetic Dystrophy 1/94; Misc. Med. Info. II 2/94; Scleroderma 3/94; Costochondritis 4/94; Peripheral Neuropathy 4/94; Class Action 5/94; Fungal Infections 6/94; Hypercalcemia (low calcium) 7/94; Raynaud's Phenomenon 8/94; Fibromyalgia Update 9/94; Sarcoidosis 10/94; Free Radicals 11/94; Porphyria 12/94; Interstitial Cystitis 1/95; Mixed Connective Tissue Disease 2/95; Flap Procedures 3/95; Misc. Med. 4/95; Thyroid Disease 5/95; Stress 6/95; Natural Healing 7/95; Adrenal Malfunctions 8/95; Multiple Myeloma 9/95; DHEA 10/95; Chelation Therapy 11/95; Sleep Disorders 12/95; Meniere's Disease 1/96; 33 Tips to Improve Your Health 2/96; Amino Acids 3/96; Enzymes 4/96; Minerals 5/96; Aluminum Toxicity, DHEA Update 6/96; Addictions & Food Sensitivities 7/96; Misc. Med. Info. IV 8/96; Misc. Med. Info. V 9/96; Misc. Med. Info. VI 10/96; Misc. Med. Info. VII 11/96; Transient Ischemic Attacks 12/96; Symptoms from Breast Implants 1/97; Pap Tests 2/97; Parasitic Infections 3/97; B-Complex Deficiency Syndrome 4/97; Myofascial Pain Syndrome & Acid-Alkaline Balance 5/97; Legal info. and info. on Alternative Medicine is contained in most issues.

DISCLAIMER: The opinions expressed here are those of the editor and any contributors and are not to be construed as medical or legal advice. Any articles or information submitted may be edited because of space, content or grammatical errors.

COPYRIGHT: Our purpose is to disseminate information and provide support. This material is copyrighted so that wemay retain control over content. You may reproduce this document as long as it is not done for profit and as long as no material, including copyright and subscription information, is changed.

DONATIONS: The Coalition of Silicone Survivors is a not-for-profit,tax-exempt corporation with over 4000 members world wide. Our editor, Lynda Roth, is a survivor having heard the dread word 'cancer' followed by the reassuring 'will look like a normal breast'. In addition to having helped start many support groups, Lynda has appeared before the FDA, congress members, national TV in the US and other countries and lectures internationally. Your donation will definitely help others receive information about the dangers of implants.

IF READING THIS NEWSLETTER HAS HELPED YOU, AND YOU THINK OTHERS SHOULD HAVE A CHANCE TO RECEIVE OUR MESSAGE, WE URGE YOU TO GIVE GENEROUSLY. Donations are tax deductible in the United States.

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