| Homepage Newsletters facts, info,articles, letters About COSS Editor Links |
![]() August, 1996
Dear Silicone Survivors and Friends:
I survived the heat attack (end of June and into
July) fairly well, but I did break out in hives (from sun exposure)
covering both arms from the wrists to the shoulders. I was wearing
SPF-50 sun block. Some of the area with hives was not exposed
to the sun. I guess that means I should avoid the sun altogether,
but that does become difficult. In any case, I am being doubly
careful now.
Thanks to all of you who called with positive responses
to the newsletter on addictions.
When you receive this newsletter, I will be off to
the NW part of the country. I make an annual pilgrimage to Oregon
to visit my mother. I will make stops in Boise (to see our wonderful
group leader there) as well as a side trip to Washington State
(there is a new group there) and to British Columbia (old friends
and new friends dealing with silicone issues). In July, I visited
a group in central California as well as old friends in San Diego
and the Bay Area of California. I also managed to visit my son
and my granddaughter in Santa Cruz. I journeyed to Houston at
the end of last month to see Dr. Campbell. Many thanks to him
and also a very special thanks to his wonderful office manager,
Linda. Thanks too to Jann for putting me up (and putting up with
me?).
We are working on several upcoming conferences. We
hope that we will have one in the NE part of the country by this
Fall (we have been trying to work this out in the Boston area
for months). We are trying to schedule one for the NW part of
the country (Tacoma, WA). These are two parts of the country that
have never had conferences so we are focusing on these areas.
There may be one in either Salt Lake City or Boise, ID also, but
that is also still uncertain. We are hoping to have conferences
in areas of the country that have never had one, so if you have
interest in this process, please let us know. Our goal is to give
all women the chance to become informed. Some may choose not to
attend, but we will make the information available for those who
wish to be better informed.
The National Organization for Women has approved
a resolution against breast implants (See end of newsletter).
It is remarkably similar to the one I printed several months ago
that was approved by the Texas N.O.W. group. This resolution passed
on June 30, 1996. We should get in touch with our local N.O.W.
groups to inform them about breast implants (take them literature
and a copy of the Revealed video {available for $39.95
by calling (800) 977-0977} to help educate them). Whatever you
can do to help with this process will help all of us and our sisters
(and our children) in the future. If you are a member of N.O.W,
you can really help by being involved. If not, call them and find
out if you can come to a meeting and present information. Get
involved. This can be done on local levels, which means no traveling
and no time away from home. Group leaders cannot do it all!!
UPCOMING EVENTS: On August
15th, there is a national effort to boycott the products of alll
manufacturers. Please contact Margaret Melvin @ (707) 298-3517
for product information.
Medical Conference, Memphis, TN on August 23-24th.
Women may attend for $15.00 and there will be a session on Friday
evening for women to ask questions and have answers about their
concerns. $10.00 should be mailed with your registration and $5.00
paid at the door. Speakers include: Drs. Smalley, Shanklin, Blais,
Ostermeyer, Sanger, Silberman, etc. There will be a panel discussion
with many of these doctors and others. Contact Peggy @ (901) 385-0709
for more information on registration for consumers. This will
be in the Peabody Hotel in Memphis. We don't have a phone number
for the hotel, but the cost is $102 a night (plus taxes). I recommend
doubling up to lower the cost a little. Last month's newsletter
contained a registration form for doctors and professionals as
well as information on hotel costs. Consumers may use that registration
form. Under specialty, write Support Group Member and send it
to the address on the form. Enclose your initial $10.00 payment.
I wish I could attend this one, but I could never afford those
hotel room rates. Because of the financial aspects of travelling,
I can usually only travel to places where I can stay with some
of the breast implant women.
In September (4th-7th) in Aspen, CO, the American
Respiratory Institute will hold their annual conference. On the
agenda will be Drs. Herman Staudenmayer, John Seiner, and Ronald
Gots. All three of these doctors will be telling allergists about
the pseudo-science of silicone induced immune disorder. If you
would like to attend with factual information (a copy of the International
Journal of International Medicine and Toxicology would be handy)
and fight back, contact Karen Hardesty in Denver, CO to find out
how to fight back. Her phone number is (303) 757-4507. Perhaps
you would like to arrange a demonstration and/or protest???!!!
Conference: St. Louis, MO Sat., Sept. 21st. Speakers
include Drs. Britta Ostermeyer, Andrew Campbell, Saul Puszkin
and Linda Huang and attorney Mike Hugo as well as Janice Ferriell
of the National Breast Implant Task Force and Lynda Roth of COSS.
For information, contact Kathy Keithley-Johnson @ (573) 445-0861.
Cost is $40.00. Hotel reservations: Stouffer's Renaissance Hotel
(314) 429-1100, $79.00 double, $89.00 for 4 persons per room.
The weather in St. Louis should be a little cooler by September
21, so let's all come together for a great conference. Right now
Southwest Airlines has great deals--call quick!!!!! Some other
airlines may be matching them! Keep calling your travel agent
as there are often one day specials that are unadvertised. Broward County Support Group, leader Phyllis Brown (inactive for 2 years) will again begin meetings in Ft. Lauderdale, FL on Sept. 16th at 7:30 P.M. For information on location, contact Phyllis at (954) 420-0098.
LEGAL INFORMATION:
Dow Corning has stated that they will make
every effort to come out of bankruptcy by the end of 1997, and
that they will for sure be out of bankruptcy by the end of 1998.
In a statement by Richard Hazleton on June 21st, he stated that
he was hopeful that the whole process could be resolved by the
end of 1997 and that he hadn't seen anything yet that would derail
that plan. We do hear that something is happening in September,
but we don't know what.
What does that mean for women who have claims against
Dow Corning? It means that they will have to have a plan to pay
the women approved by the court by that time. The committee of
nine that is working on the plan will probably have a lot more
information on this later, but, as you know, they have been extremely
silent as to what negotiations have been occurring. We will let
you know something when we get the information.
Will women who have had Dow Corning implants get
the amount originally stated on the grid? EXTREMELY UNLIKELY!!!!
I have heard these rumors, and they are harmful and create unnecessary
expectations! We do hope that the final amount is at least what
the big three settlement is offering or more, but let's not speculate
about amounts before we have solid information. It just creates
more problems for many women when expectations are raised only
to crash again. Please be careful with rumors. The persons you
harm will be other victims of breast implants.
In a case related to product liability, Medtronic
lost a Supreme Court battle to avoid liability in a state court.
Medtronic had declared that it was not liable under state laws
because its product had been approved for sale by the U.S. FDA,
and that their authority preempts state law. This means that the
case that was being tried can proceed to court. This is important
because manufacturers of breast implants and other devices are
trying to have their liability waived by asking for protection
when their products have been FDA approved. Other product manufacturers
have been pushing this concept also. What this would mean is that
they would have a license to kill as long as the FDA had approved
the product. Now, isn't that ethical and honest!!! Fills you with
confidence, doesn't it???
HR 3468 Update: This is the Biomaterials Access Assurance
Act that would keep Dow Corning from being liable for their component
parts that were placed in implants by other manufacturers. This
bill would protect them in spite of the fact that Dow Corning
knew its silicone would bleed from implants, would spill into
the body when implants ruptured, and in spite of the fact that
these other companies were relying on the fact that Dow stated
they had tested this product and it was safe. Dow also knew their
products caused immune diseases in the animals they tested. This
legislation would exempt all suppliers of raw materials and component
parts from liability for the finished product manufactured by
another company. Contact your representative and ask them to oppose
HR 3468. Explain why component manufacturers should be held liable.
Many component manufacturers could ship defective parts or components
and not be held liable under this bill. It is just another attack
on the rights of the consumers in this country. Act quickly, as
time is important here.
Apparently, the panel of doctors to be appointed
by Judge Pointer (to examine the question as to whether silicone
implants are safe or make us ill) is not yet in place. Nominations
have been made in the fields of Epidemiology, Immunology, and
Rheumatology. Nomination(s) in the field of Toxicology will be
submitted shortly. We hear that Judge Pointer has had difficulty
finding unbiased doctors. While I have heard this decision to
create a panel criticized by many as unnecessary (since we all
know that silicone toxicity has been proven), I think that it
was necessary. Judges in other states (notably N.Y. State) were
planning to appoint doctors to research this question. What Judge
Pointer did was to preempt them by doing it himself. This way
he had more control over who was appointed so that he could make
sure they were fair and impartial. Let's wait and see what the
outcome is before we criticize this situation. As I see it, we
can't be any worse off than we are now! This idea for a panel
of doctors came up in the Agent Orange lawsuits and was Dow's
way of having experts dispute the harm done. In the numerous lawsuits,
this favored them. We want to make sure that, if there is a panel,
they are not biased against us.
Many (over 31,000 who sent in the blue proof of manufacturer)
reportedly have now received the status letter. 38% (over 15,000)
waived further opt-out rights. 93% of that group have been mailed
advance payments of $5000 or $1000 and 2000 have been mailed the
explant fee of $3000. Additional distributions of from $10.000
to $100,000 have begun to Current Claimants. If over four months
have elapsed since you sent in the blue proof of manufacturer
form, and if you think you qualify for the big three settlement
(Baxter Healthcare-Heyer Schulte, Bristol-Meyer-Squibb-Surgitek,
or McGhan-3M) and you have not received any paper work or check
by now, contact the Claims Office at (800) 600-0311 immediately.
If you have not sent in the blue proof of manufacturer (I recently
met a woman who stated her attorney had advised her to do nothing),
please sent it immediately. You should have received something
by now if you had any of these manufacturers. Of the 102,000 class
members who have returned election forms, about 4500 opted out
on the election form and another 890 have opted-out after receiving
their notification of Status Letters (so far). If you had Dow
Corning or any of the other numerous brands, hold off and wait
a while. More information should be coming soon. Make sure that
you are registered in the Dow Corning Bankruptcy if your implant
was Dow Corning or had any Dow Corning components and especially
if you have only had one of the manufacturers not included in
the big three (Baxter, Bristol, and 3-M-McGhan).
There is a delay of status letters to Post 8/84 McGhan
recipients because of an appeal of the settlement. This should
not delay any payments.
Mentor and Bioplasty: On July 26th, Judge Pointer
entered Order 33 tentatively approving a plan for distributing
Mentor and Bioplasty settlement funds. Notices of this plan along
with claim forms will be mailed to Mentor and Bioplasty implant
recipients (or their attorneys) once the Claims Office has developed
a mailing list--probably (??) before the end of August. Attorneys
will be responsible for distributing copies to clients with these
implants. Deadline for filing claims, which must be signed by
claimant (not attorney) is 12/16/96. If the deadline is the end
of 1996, I assume no moneys will be distributed prior to 1997.
Inamed has filed a motion with the court to have
a mandatory class action for any recipients of their implants.
Stay tuned for more on this one. This would affect Cox-Uphoff
recipients.
More information on the Mentor and the Bioplasty
settlements should be available by mid-August. Call (800) 887-6828
in Mid-August for an update and stay tuned.
Koken was denied a motion for summary judgment. They
have filed for a reconsideration, meaning they are still trying
to duck responsibility for problems caused by their implants.
I don't expect they will fare any better with the second motion.
Union Carbide also filed a motion for a partial summary
judgment. They also want to limit their responsibility. More on
this later?? Bankruptcy Settlement: How the settlement will probably work is that anyone with only a claim against Dow Corning (or anyone not covered by another settlement, perhaps, but with a valid claim against Dow Corning) will be entitled to what they are offered when the bankruptcy is finally settled. If you have received another settlement, any amount you previously received will probably be subtracted from any amount you may be eligible to receive in any bankruptcy settlement. While this may not be set up this way, several of our experts tell us that it probably will be to insure that all women can receive something and that women do not double-dip (take funds from two places--which would mean that others would get less because of a reduction in available funds).
Foreign women who had Dow Corning implants may be
eligible to participate in the Dow Corning bankruptcy. As of this
time, we are not aware of any barrier to foreign participation.
Their implants would presumably have had to have been manufactured
in the U.S. by Dow Corning. While this is not certain, at least
it is a distinct possibility. Let's cross our fingers for these
women who may otherwise have no recourse.
The Mentor settlement will probably also be paid
out by the same principle. Those with only a claim against Mentor
(and not one of the big three) would be eligible for a settlement
from the funds collected from Mentor. If you have received any
settlement from elsewhere you will probably not be able
to participate in the Mentor Settlement.
MEDICAL INFORMATION: Don't
This Beat All?? Some doctors in central Michigan are
immune to lawsuits for medical negligence if they have something
go wrong with their treatment. A small group of doctors who also
teach at Michigan State University School are exempt by Michigan
Law. Two persons who tried to sue are taking their cases to the
Michigan Supreme Court asking them to hold the doctors liable.
Lansing and Mid-Michigan women, watch out. Your doctor may be
immune from legal action if they also teach at Michigan State
University School. I don't think I would want to see a doctor
who couldn't be held accountable for his/her actions. How would
you know if they were immune? I guess you would have to ask. I
think I would!
Thirty researchers in various disciplines are joining
forces to try to find out which materials the body will not reject
or will not induce reactions. This is supported by a $12.4 million
grant from the National Science Foundation plus matching contributions
from 3M, Baxter Healthcare, Dow Corning, and other
companies. (I wonder why they didn't research this over 30 years
ago before they implanted all these bioreactive implants into
our bodies). This research project could last 10 years. Another
research team will explore proteins that trigger healing and look
for ways to embed them into man-made materials (genetic engineering?).
This would help prevent the body from walling off implants behind
scar tissue. While this research is necessary for life-threatening
organ transplantation, I suspect the technology will be utilized
as another way to implant other objects as well and thereby make
more rich companies (or current ones more wealthy). All this at
the time that they are trying not to pay victims of defective
products. Doesn't that seem ironic to you??
Cystitis, Bladder
Infections, or UTIs (Urinary Tract Infections) are common in women
and have several causes. UTI's can be defined as inflammation
of the bladder caused by bacteria (most commonly) or other sources
of infection that generally ascend through the urethra to the
bladder. Most common in women, this is because the urethra is
very short (about one and one half inches) as opposed to about
8-9 inches in men. UTI's are among the most common causes for
women to visit physicians.
One reason these infections are so common in women
is the location of the urethra (very close to the vagina and anus).
Bacteria from the rectum often migrate to the urethra opening
and cause infections. Wiping properly after urination can help.
Women should always wipe from front to back (with both bowel and
urinary movements) to help prevent the spread of bacteria commonly
found near the anal area. Vaginal sources of bacterial infection
are also common. Urinating often is a woman's best defense against
cystitis as this flushes the urethra often and washes out the
bacteria. This is especially important right before and right
after intercourse (best when the bladder is full, as this will
wash out more bacteria) or when a vaginal infection is suspected
or known. Bubble baths should be avoided (a leading cause of bladder
infections in children), douches can cause infections, diaphragms
which cause pressure on the urethra (too tight or overly large
which puts pressure on the bladder neck) are a common cause of
UTI's, and vaginal sprays are also a problem. The contraceptive
sponge may also be a contributor. Replacing these forms of birth
control with the cervical cap may eliminate this problem area.
85% of diagnosed bladder infections are from Escherichia
coli (E-coli) which is found in the intestines. Enterocci is another
bacteria sometimes responsible for infection. Chlamydia is also
common in sexually active women (often with more than one partner,
but not always), and this is a sexually transmitted bacteria.
In fact, cystitis is more common in sexually active women as bacteria
is easily transmitted from the anus to the urethra during sexual
activity. Inability to completely empty the bladder can lead to
repeat infections.
Symptoms include urgency (need to urinate quickly),
painful or difficult urination, the feeling that one must urinate
again after just doing so and sometimes pain in the lower abdomen
or pubic area. Urine can be bloody and/or foul-smelling. Chills
and fever may be present, but often are not. Back pain may be
present, but often is not. There may be nausea but this is not
common. Some of these symptoms may mean kidney involvement and
this is a more serious condition. Infections can also be asymptomatic,
meaning that they are present without symptoms. There are home
test kits for bladder infections. Ask your local pharmacist for
a product called Dipstick. Symptoms may exist when no infection
is present. This can be a result of changes in blood flow to the
bladder, endometriosis, low back problems or hormone problems.
If you have any of these problems, testing may be important.
Treatment: Antibiotics may be necessary. The sooner
the treatment, the fewer days of antibiotics are necessary. In
the first day or two often less dosage of medicine is recommended.
A culture can be repeated after two days to see if bacteria are
still present. After 3 or more days of infection, heavier dosages
and longer periods of treatment are often necessary. The patient
must drink lots of water. Acidophilus should be taken at any time
an antibiotic is taken to help prevent other problems, notably
yeast infections. As an adjunct to treatment, garlic, L-cysteine,
Vitamin B-Complex, Cornsilk, calcium-magnesium, essential vitamins
and minerals, Vitamin A, Beta-carotene, and Vitamin E are helpful.
To restore bladder and kidney function to normal, herbs such as
burdock root, juniper berries, marshmallow root and rose hips
may be beneficial. Goldenseal is also good for bladder infections
when bleeding is present. This herb should be avoided by pregnant
women. Dandelion tea and dandelion extract can help cleanse the
system. Uva ursi in small amounts can be a diuretic when combined
in a tea with other ingredients. Bearberry is a mild diuretic
and antiseptic. Birch leaves are also a mild diuretic and work
as an antiseptic (pain-killer) when pain is present. Hot sitz
baths will relieve pain and discomfort. A product called Batherapy
is available at health food stores. Don't take iron or zinc until
healed. Don't take cranberry capsules or drink cranberry juice
until healed. Avoid foods high in amino acids until infection
is cleared. Avoid red wines.
Prevention: Empty the bladder often. Habitual holders
of urine are more likely to have bladder infections. Empty your
bladder before and after any vigorous exercise, including always
before and after intercourse. Avoid feminine hygiene sprays, douches,
bubble baths, etc. Keep genital and anal areas very clean (very
mild soap--natural soaps from health food stores are available)
and dry. Wipe from front to back. Wear cotton underwear. Drink
cranberry juice (not sweetened, as Ocean Spray is) or take cranberry
concentrate capsules. Drink steam-distilled or purified water,
and lots of it (Eight 8-ounce glasses a day, minimum). Avoid citrus
juices and fruits, avoid all carbonated beverages, caffeinated
beverages (coffee, tea, chocolate) and alcoholic beverages, and
do include parsley, celery and watermelon in your diet (these
are natural diuretics) and take acidophilus regularly. Avoid over-the-counter
diuretics (water pills) as they deplete the body of magnesium
and potassium. Watch for food allergies as these can cause bladder
problems. They may mimic infections. Avoid aluminum cookware as
it may cause cystitis symptoms. Taking zinc regularly may help.
If you suspect kidney involvement, you must seek treatment immediately,
as this is much more serious and can cause many more problems.
Interstitial Cystitis was the topic of a former newsletter. It
is a chronic condition with many similarities but also major differences.
This information came from numerous sources, including
Prescription for Nutritional Healing; Alternative Medicine, The
Definitive Guide; The Columbia University College of Physicians
and Surgeons Complete Home Medical Guide; & Current Medical
Diagnosis & Treatment. 1994.
Food Poisoning:
How can you prevent it in your home? 50%
of all food poisonings come from your own kitchen!! The cleanest-looking
kitchens are often the most contaminated because they are wiped
down so often and bacteria is spread from place to place by the
cloth used to wipe them.
Where are E-coli and other dangerous bacteria found
in your kitchen? The most common places are: Sink drains, counter
tops, cutting boards, stove surfaces, stove & refrigerator
handles, refrigerator shelves and cleaning clothes and sponges.
Hand towels (used for drying hands when cleaning and cooking)
are often contaminated.
How can you prevent food poisoning in your kitchen??
A few good rules are: Use separate cutting boards for vegetables
and for meats. Don't use the meat cutting board for anything else.
Clean cutting boards after each use (or when doing dishes) with
a solution of bleach and water (even wooden cutting boards). Microwave
wooden cutting boards for 2-3 minutes often. If you use a sponge,
use clorox-water solutions to clean with and run the sponge through
the dishwasher with each load of dishes. Wash dishrags and kitchen
towels every day. Use the bleach-water solution to wash your counters,
stove, refrigerator handle, sink, floor spills (unless you have
carpeting), and table top. Use this type of solution to clean
the refrigerator shelves, and do it often. Shampoo carpeting with
a disinfectant. Wash any throw rugs often. Don't touch anything,
even faucet handles, after handling any meat (fish and poultry
included) until you have washed your hands with disinfecting soap.
Scrub under your fingernails. If you use a scrub brush for vegetables
or dishes, wash it (them) in the dishwasher. Use the drying cycle
as it is the dry heat that kills the germs. If you use any utensils,
cutting blocks, sinks, knives or forks, etc. for raw meat of any
kind, don't use them again until the surface has been thoroughly
washed (preferably in the dishwasher or with bleach-water solution).
If you set utensils in a spoon-holder, wash that also before reusing.
If you wish to prevent food poisoning, you must think about how
you prepare food and clean up the kitchen. Remember, 50% of food
poisoning comes straight from our kitchens. Better to be safe
than sick. Our immune systems simply are often too weak to resist
common bacteria.
More on addictions: Xanax, a benzodiazepine drug
similar to Valium, is often given to treat panic attacks and anxiety.
It is stronger and more addictive than Valium, but many doctors
were never warned of this potential. Xanax should never be used
on a daily basis except for very short periods of time (less than
3 months). There was a general failure to perceive the difficulty
to quit this drug. If you become addicted, you can not skip dosages.
People quitting can have seizures and other problems. Persons
taking this drug should never increase the dosage prescribed,
even if it begins to lose effectiveness and may take more of the
drug to have the same effect. The drug can actually create anxiety
and give the person taking it a feeling of being out of control.
Xanax can actually compound the problems it was given to treat
instead of relieving them. It can cause major depression and homicidal/suicidal
tendencies. These are common problems seen in treatment centers
where persons on Xanax are treated for addictions. Xanax can actually
create a worse addiction than heroin. There are over 8000 emergency
room visits a year for Xanax addictions. This is a drug that should
only be prescribed by a psychiatrist. Withdrawal from long term
usage should only be done in a medical setting because death can
result. This advice comes from many medical persons and psychiatrists.
ALTERNATIVE MEDICINE:
Soy protein may lower cholesterol dramatically, especially when
it is substituted for animal protein. Eating 47 grams of soy protein
significantly decreases the bad cholesterol, LDL but does not
lower the good cholesterol, HDL. It also reduces triglycerides
significantly. In a recent study (New England Journal of Medicine),
Dr. James Anderson reported significant decreases in LDL and triglycerides
with soy protein, and, he stated, the higher the levels, the greater
the reduction.
Since soy protein contains estrogenic soy flavonoids,
called isoflavones, soy proteins should not be consumed in excess
by persons unless there is a medical necessity. Because of estrogenic
activity, there are concerns about damage by soy to children who
are fed exclusively with soy products. Soy in moderate amounts
has been shown to be helpful to many persons and is a healthy
alternative to animal proteins.
Vitamin E may reduce the occurrence of non-fatal
heart attacks by 77% in those with coronary disease. After just
one year, a dramatic decrease in heart attacks has been demonstrated.
This form of therapy has been used since the 1930's, but has not
yet found wide approval. These results were published in The
Lancet in March of 1996 by researcher Nigel Stephens.
It has been demonstrated that Vitamin B6 is helpful
for PMS, Carpal Tunnel Syndrome, Tarpal Tunnel Syndrome, hyperactivity
in children, asthma, and even kidney stones. The reason that many
individuals are deficient in B6 stems from pollutants in our environment.
The disorders that Vitamin B6 seems to help have become common
in recent years. There are really no mention of things like Carpal
Tunnel Syndrome in the medical literature of 100 years ago. Besides
the fact that we have more repetitive jobs than in the past, our
food also comes from soil that has been depleted, consistently,
of the minerals and nutrients that it used to contain. Chemicals
used in industry and agriculture, chiefly hydrazines and hydrazides,
interfere with some biochemical functions that depend on Vitamin
B6. Since hydrazines and hydrazides now contaminate the food supply,
Vitamin B6 may not be as readily absorbed by the body. Therefore,
we may need to supplement this important nutrient.
How does B6 help PMS? For one, it has been shown
to reduce premenstrual weight gain. In a double-blind study, it
produced improvement in symptoms in 21 of the 25 women (with moderate
to severe pre-menstrual tension) who took it as opposed to those
taking a placebo. We don't have all the facts about this study,
but B6 is economical and worth a try if you are suffering from
PMS.
What is Carpal Tunnel Syndrome (CTS) and why does
Vitamin B6 help? The Carpal Tunnel is the area around the wrist
through which the median nerve passes. When this nerve receives
pressure, numbness, tingling, pain and weakness in the thumb and
the first two fingers and half of the middle finger occurs. Persons
with these symptoms have been shown, frequently, to have a deficiency
in Vitamin B6. In a three month trial, this nutrient greatly improved
the symptoms of seven persons as opposed to a placebo given a
control group. This same definition covers Tarpal Tunnel Syndrome,
only it is the ankle bones being described.
Why would Vitamin B6 help childhood hyperactivity?
In some hyperactive children, a deficiency of serotonin has been
found. Vitamin B6 can raise serotonin levels thereby decreasing
symptoms. In a trial utilizing Vitamin B6, Ritalin, and a placebo,
the Vitamin B6 group had the largest relief of symptoms. It was
more effective than Ritalin which is commonly prescribed for hyperactive
children.
In asthma, lab tests often confirm that asthmatics
have a Vitamin B6 deficiency. Routinely prescribed drugs such
as theophylline and aminophylline may further decrease the body's
stores of this nutrient. In a double blind study, children receiving
this Vitamin has less symptoms. In another study, adults had a
dramatic decrease in symptoms when taking this nutrient. Treatment
with Vitamin B6 may decrease the need for prescription drugs.
Kidney stones are generally formed from calcium oxalate.
Vitamin B6 helps prevent the body from producing excessive amounts
of oxalate. In a study of 140 patients who had recurrent calcium
oxalate kidney stones, treatment with B6 and magnesium for between
4-6 years decreased the rate of new kidney stone formation by
more than 92 percent. The dosage of Vitamin B6 was as little as
10 mg. per day. Excessive dosages of Vitamin B6 should not be
taken. Nerve damage can result. Most conditions respond to 50mg.
or less of this nutrient per day. If you are taking more than
200 mg. per day, you should be under the care of a professional
who understands nutrition.
This information is from Vitamin B6: The Natural
Healer by Dr. Alan Gaby.
PERSONAL COMMUNICATION:
Turned down by Aetna for explant? So was Barbara
Stock, and she needs your help. She has about 45 days to find
persons denied explantation by Aetna Insurance in order to show
bad faith in her current lawsuit against Aetna. Her situation
may help yours, especially if you were denied funds for explant
in the last three years. You may still be able to collect! If
you can help, contact Barbara at (407) 629-8791.
More on water treatment: Steam distillation actually
condenses chemicals that are close to the same boiling point as
water. Donna Spence, of Longmont, CO has been working with a special
treatment program for water called Structured Matrix and this
system removes bacteria, parasites, chlorine, pesticides, herbicides,
etc. Some systems kill those bacteria. Contact Donna at (303)
772-2093 or FAX (303) 776-3611.
Mary Weatherby would like to hear from women with
vasospasms (these have caused her skin to become tightly drawn,
shiny, and pulled to one side of her legs, hands and face. Her
doctor states that this is not true scleroderma, but a scleroderma-like
disease. If you have had this problem, contact her at Rt. 1 Box
383, Sioux City, Iowa 51108 (712) 239-5022. If you cannot afford
to call, you may call her collect. She is becoming deformed by
this illness and is desperate for another woman similarly afflicted
to speak with.
Several women have contacted me with information
that glucosamine sulfate (salts) were very helpful to her in treating
their fibromyalgia, fatigue, and some other symptoms.
I recently have attempted to quit taking Desyrel
(trazadone), the one and only prescription drug I have been taking.
I have a sleep disorder which this drug helps. I am trying to
quit taking it because I have learned that any anti-depressant
can suppress your immune system, and mine is quite suppressed.
Now I have worse fibromyalgia problems and more sleep problems
and will be working on ways to have more relief. If you have any
ideas, please mail or fax them to me. I won't take another prescription!
LOSS OF WORK CAPABILITY SURVEY:
Susan Lyons is collating information on how implants have taken
away our ability to earn a living. Please, in the strictest of
confidence (all identifying information will be removed so that
no-one may find out who sent it in), if you are willing, send
your responses to these questions to P.O. Box 508, Penrose, NC
28766 or e-mail your responses to her at: slyons@infoave.net
1) Average yearly earnings and number of hours worked
per week before silicone illness? 2) After? 3) Your profession/
career/goals before and after? 4) Able to work at all now? 5)
Applied for or receiving disability? 6) How has your (diminished?)
ability to work impacted your family, ability to care for children,
your economics, your life? 7) Available for phone interview? Please
include phone number! 8) Additional comments? You do not need
to copy the questions as long as you include the number for each.
Since the media is getting incorrect information from the manufacturer's
and doctor's, we must have someone give out correct information.
To respond is an individual choice, and Susan respects each person's
wishes. IMPORTANT: Please be aware that the so-called safe saline (silicone shell saline filled) implant contains saline that is dated. Generally the date on the saline solution is no more than one year after the date of insertion into the individual implant. Manufacturer's of saline solution have protected themselves by stating that their product was never intended for implantation inside the human body. So, who do you blame? The implant manufacturer who made the defective product?!
Nose pieces on many glasses are composed of silicone.
If you have trouble with these, ask the eyeglass
store to replace them with plastic nose pieces.
We have had over a dozen women remind us of this little detail.
BOOKS: Dr. Marsha Angell
(of New England Journal of Medicine infamy) has come out with
a book. She has been described as impartial, disinterested, and
biased. If she is all those things, so am I!!! She says she is
a liberal Democrat and a feminist. I sincerely doubt the feminist
part, and I certainly wouldn't claim her as a Democrat. I have
a copy of her journal article in the NEJM. Send $1.00 and SASE
for a copy. In any case, her book will tell the world how safe
implants are. She flouted the flawed studies from last year, and
you can bet that this book will have the best of publicity. Let's
fight back. The book is entitled Science on Trial; The Clash
Between Science and the Law in the Breast Implant Case. DON'T
BUY THIS BOOK! It has been released, so this would be a good
time for new blood out to write letters, beg on talk shows, etc.
And let's not forget those who have been around for awhile (we
can still fight back). We must fight back or they will
win this war!! DON'T BUY THIS BOOK! We don't want to give
them any more profits than they already have.
THIS MONTH'S POEM: TAKERS and LEAVERS
by Sandra Sharp
In our world today, quite sadly we find
They take as they wish and do as they please
They feel it's their due to have their demands
They use up resources for all they're worth
They use each other for personal gain
These are the takers, who, to our dismay
How grateful we are our planet still holds
Those who still value the virtues of living
From care of families and care of sod
We call them leavers, for always we find
Committed to making, right to the end
These are the people from far and near
Takers leave only dust
when they die
A Leavers imprint forever will last
No takers you'll find in heaven above
PREVIOUS NEWSLETTER INFORMATION:
Previous issues of newsletters are available for
$2.00 each U.S., $3.00 Foreign. January 1993 is the first available
issue. Please indicate months' desired and enclose $2.00 (US),
$3.00 (Foreign) each. Some subjects covered have been: Auto-immune
(1/93); Fibromyalgia (2/93); Medical Testing (3/93); Sjogren's
(4/93); Vasculitis (4/93); Arthritis (5/93); Chronic Fatigue (6/93);
Lupus (7/93); Irritable Bowel Syndrome & Inflammatory Bowel
Disease (8/93); Insurance (8/93, 9/93); Miscellaneous Medical
Information (9/93); Multiple Sclerosis (10/93); Spasmodic Torticollis
(10/93); Hypoglycemia (11/93); Antibodies (12/93); Reflex Sympathetic
Dystrophy (1/94); More Miscellaneous Medical Information (2/94);
Scleroderma (3/94); Costochondritis (4/94); Peripheral Neuropathy
(4/94); Class Action (5/94); Fungal Infections (6/94); Hypercalcemia
(low calcium) (7/94); Raynaud's Phenomenon (8/94); Fibromyalgia
Update (9/94); Sarcoidosis (10/94); Free Radicals (11/94); Porphyria
(12/94); Interstitial Cystitis (1/95); Mixed Connective Tissue
Disease (2/95); Flap Procedures (3/95); Even More Miscellaneous
Medical (4/95); Thyroid Disease (5/95); Stress (6/95); Natural
Healing (7/95); Adrenal Malfunctions (8/95); Multiple Myeloma
(9/95); DHEA (10/95); Chelation Therapy (11/95); Sleep Disorders
(12/95); Menieres Disease (1/96); 33 Tips To Improve Your Health
(2/96); Amino Acids (3/96); Enzymes (4/96); Minerals (5/96); Aluminum
Toxicity & DHEA Update (6/96); Addictions & Food Sensitivities
(7/96) Legal; most issues; & Alternative Medicine; most issues.
DISCLAIMER: The opinions expressed here are those of the editor
and any contributors and are not to be construed as medical or
legal advice. Any articles or information submitted may be edited
because of space, content or grammatical errors.
COPYRIGHT: Our purpose is to disseminate information and provide
support. This material is copyrighted so that wemay retain control
over content. You may reproduce this document as long as it is
not done for profit and as long as no material, including copyright
and subscription information, is changed.
DONATIONS: The Coalition of Silicone Survivors is a not-for-profit,tax-exempt
corporation with over 4000 members world wide. Our editor, Lynda
Roth, is a survivor having heard the dread word 'cancer' followed
by the reassuring 'will look like a normal breast'. In addition
to having helped start many support groups, Lynda has appeared
before the FDA, congress members, national TV in the US and other
countries and lectures internationally. Your donation will definitely
help others receive information about the dangers of implants.
IF READING THIS NEWSLETTER HAS HELPED YOU, AND YOU THINK OTHERS
SHOULD HAVE A CHANCE TO RECEIVE OUR MESSAGE, WE URGE YOU TO GIVE
GENEROUSLY. Donations are tax deductible in the United States.
As a member you will receive a highly informative information
packet and this newsletter, including the CURRENT ISSUE, for the
next 12 months. EMail us the following: TO: coss@siliconesurvivors.net
If you do not wish to send your credit card information over the
net please call (303) 499-2765 and leave a voice message with
the above information. Please be sure to leave your phone number
so we can call back if your message is unclear. Your donation
will appear on your statement as a charge by COSS Newsletters.
Checks: Don't leave this to memory.
Please write the check and address the envelope NOW. Silicone Survivors INTERNET ADDRESSES:
Letters to the Editor: coss@siliconesurvivors.net Subscribe Top of this Document Copyright 1997-2001 Coalition of Silicone Survivors
|
| Homepage Newsletters About COSS facts, info,articles, letters Editor Links |