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August, 1994

Dear Silicone Survivors and Friends:

The Multi-District Hearings were held in Denver July 13th and 14th. Insurance subrogation issues were discussed (the health insurance companies wish to become a party to the class action suit, and Judge Pointer mentioned that he might have to let them in, if only so he could then rule against them), the number of women who may become members of the class was discussed but no estimates were given except that there were approximately 15,000 opt-outs, fears of a mandatory class action were basically only touched upon, having women have so little time to be placed on the grid was brought up but there will be no changes, the inability of women to find attorneys was again discussed, and the problem of some attorneys charging money up front for women to help them be placed on the grid was also discussed (this is allowable only to cover expenses, not for any part of the contingency fee). More attempts were made to bring Dow Chemical back into the class action suit. The interconnectedness of Dow Chemical and Corning, Inc. with Dow Corning has been an ongoing issue. One disturbing discussion regarded using D.O.'s to place women on the grid. This apparently is not acceptable. Some D.O.'s are having an MD work with them and sign the paperwork, and apparently this is OK. Be very aware of the rules of this game! There is more on legal issues below.

We have the information by Public Citizen that addresses the Mayo study. Send $1.00 and a SASE (self-addressed stamped envelope and request the Public Citizen answer to the Mayo Study. This information points out some of the apparent flaws and short- comings of this study.

Update on the computer fund: Thanks to all of you who sent both small and large contributions, we have most of the necessary funds to update the computer. Part of it has been done and the rest will be completed shortly. I cannot adequately express my thanks to all of you who have made it a little easier for me to get information out to everyone who requests it. The newsletter will be much easier to write now also. Thank you, thank you, thank you!!!!!

A number of you have asked me if I have opted out of the class action. I did not opt out because my manufacturer was Mentor. If I had been implanted with Heyer-Schulte, Surgitek, 3-M (Or McGhan prior to 1984) and possibly Dow Corning, I probably would have chosen to opt out. In any case, the money issue has never been the most important one for me. The most important issue, as I see it, is my health. I would give them back every dime if I could recover and be as healthy as I was prior to 1990. I am also more concerned about getting the information out to the women than I am about collecting a large sum of money. So, although I would personally like to proceed with my case in Federal Court (I think most of us would like to have the manufacturers found guilty), I am moving on with my life and am trying to keep the flow of information going throughout the country and in the other countries where there are active organizations.

I have also been asked what my diagnosis is for the class action. At this point, I have several diagnoses. I have peripheral neuropathy (positive myelin antibodies, antisulfatide, antisialoganglioside, but did not have a positive MRI although I had a very bad spect scan, EEG, QEEG, etc., and have numbness, pins and needles, etc.), which drives me nuts at times. I have been diagnosed with lupus [My symptoms are: leukopenia, which means a lowered white blood count, malar rash, photosensitivity (which is continually getting worse), seizures (which recently happened again), positive ANA, arthritis, and oral ulcers - 7 of the 11 symptoms with 4 required for diagnosis]. This part of my illness seems to be getting worse on a gradual basis. I also have atypical problems like many other women. Whichever one I can get verified and documented will be the one I use for the class action. I certainly am aware of all the problems that women are having getting diagnosed with their true condition(s). This seems to be true even with the most well-known experts that have been supportive of us.

The Alaska trip went well and I believe there is a good start to a support network there. We have had a great contact person there for some time and I think she now has some good women to help her move ahead. It's great to see this happening all over the country (world?). And yes, I am exhausted!! And yes, I did actually take some time to see Alaska! It is big and beautiful, but I wouldn't want to spend a winter there. But, in the summertime, as the T-shirts say, 50,000,000 mosquitos can't be wrong! If some of you have wondered why I haven't returned your phone calls or sent your articles, this is the reason. I have been gone about one-half of this last month and will be gone over one-half of next month.

From CTN: Penile Implant Class Action: Steven Fabbro of Brown, Monzione, Fabbro, Zakaria and Scarlett, a law firm in San Francisco, CA is one attorney who has filed a class action suit against American Medical Systems, Inc. (AMS), a manufacturer of penile implants. The parent company of AMS is Pfizer, Inc. The suit is named King V. American Medical Systems, Inc. C941808 CAL (N.D.Calif). The court has been asked to consolidate the action as MDL-1020 on behalf of 300,000 men in the US. Anyone with this penile implant may call Mr. Fabbro for information at (415) 834-1111.

I receive a number of requests each month to mail information by Express Mail to women (even some students, reporters, etc.). I have done this in the past, and, in most cases, have been reimbursed for it. Unfortunately, in too many cases I have not been reimbursed. The two most memorable offenders were a Kansas City attorney (who asked me to express mail at $9.95 my written support to get Dan Bolton on the MDL Committee and promised to reimburse me) and a California woman (who stuck me with a $15.50 bill plus a $10.00 no-account fee when Federal Express discovered she didn't even have an account with them--even though she had sent me an envelope with the information already printed on it. Not too surprising, this same women had bounced a $100 check to my conference in Denver which took me a very long time to collect.) Because of this and numerous other failures to pay postage (especially large amounts), information can only be sent when the postage has been paid in advance. We sincerely regret this inconvenience and we know that the majority of our women are totally honest and would never try to cheat anyone. When some fail to meet their obligations, it affects all. We wish it were different. If we were a large corporation and had adequate funding, it would be different. As many of you know, our first two years we went $17,000 in the hole, so we are much more careful now. It is the only way we can survive. Our expenses often reach $3000 per month.

Do you know someone who publishes books? The Untold Truth, a most wonderful book, may never be republished unless the two authors can find a publisher. They have revised this book, added a great deal of new, wonderful information, and would dearly love to make it available. In order to republish this new version, they would need well over $10,000 dollars up-front. Most of us could not afford to do this, and neither can Marion Koch and Patti Scher. They need your help. If you know of a publisher that would publish and actively market this book for them, contact Marion Koch at 859 Mercersburg, Collierville, TN 38017 or call her at (901) 854-5083. This book is too valuable to let it die. Marion and Patti need your help.

UPCOMING EVENTS: The Breast Implant Awareness Support Team of Lincoln, NE will meet on the first Monday of every month at the Lincoln Cancer Center, 4600 Valley Road, Ste. 336, Lincoln, NE. This month's meeting is August 1st at 6:00 P.M. Contact Catherine Tverstol (402) 477-8915 for more information.

Triad Silicone Network, Jill Stone, of Greensboro, North Carolina is sponsoring a National Breast Implant Conference entitled Medical and Legal Awareness 8:00 to 6:00 P.M. on August 27th, 1994 at the Holiday Inn Four Seasons-Koury Convention Center Ballroom, 3121 High Point Rd. in Greensboro. Speakers are: Dr. Pierre Blais, Dr. Lu-Jean Feng, Dr. Andrew W. Campbell, Dr. Nachman Brautbar, Dr. Aristo Vojdani, Dr. Rahim Karjoo, Dr. Frank Vasey, Dr. Paul Cheney, Dr. Bernard Patten, Dr. David Smalley, and Patti Scher, R.N. (Co-Author-Untold Truth). There will be a special appearance by Jenny Jones of the Image Foundation. Cost (which includes continental breakfast and a lunch) for consumers is $45.00 in advance and $60.00 day of conference, consumer and significant other $75.00 in advance and $90.00 day of conference, professional $55.00 in advance and $70.00 day of conference. Hotel reservations can be made at the Holiday Inn Four Seasons (910) 292-9161 at $80.00 per night (up to four people in room) by identifying yourselves as being with the Triad Silicone Network Conference. For more information, call Jill at (910) 854-5338 or write to her at Triad Silicone Network, P.O. Box 7631, Greensboro, NC 27417. I had planned on attending this conference but ended up having a conflict with the Seattle meeting. I wish them all the best and hope that many women attend and become better informed.

PROJECT IMPACT: Meeting August 6th, 10-3 Potluck lunch and meeting at Golden State Rehabilitation Center in San Ramon. I will be there to speak for this meeting. Contact Linda Thompson at (510) 420-0151 for more information.

PORTLAND, OR meeting: Saturday, August 20th, 1:00 P.M. at the Holiday Inn, Candlewood Room, Exit 286, just off Interstate Highway 5. $5.00 Donation requested to offset costs of meeting room. I will be heading for Oregon right after I leave Birmingham to speak at this meeting. (I will be in Alabama to speak at the Fairness Hearings.) There are a number of groups in Oregon and we hope all will be represented at this meeting. Networking is one of the most important things we can do to help to empower ourselves and each other.

SEATTLE area: There will be a special meeting Saturday, Aug. 27th at the Sea Tac Red Lion Inn (near the airport) at 1:00 P.M. I will be the speaker and I think all of the area contact women will be present to meet with the women in this area. We hope to see all the Western Washington women there. There is no charge for this meeting, but donations to the cause are always welcome. Your local women have paid for this room so that this meeting could happen.

Notify us of your SPECIAL meetings by the 23th of the month and we will try to include them in our newsletter.

LEGAL INFORMATION: The Fairness Hearings for the Lindsey Lawsuit, most commonly known as the global settlement, will be held in Birmingham, AL on August 18th, 1994 at 9:00 A.M. at the Birmingham Jefferson Civic Center, 1 Civic Center Plaza, Birmingham, AL 35202. The hotel where there are some reserved rooms is the Sheraton Civic Center Hotel, 2101 Civic Center Blvd., Birmingham, AL 35202. Call (205) 324-5000 or (800) 325-3535. Just a hint: My travel agent has often been able to get a better price on hotel rooms, even those with 'special rates" for an event. Apparently, even though it has been stated before that you must have registered to speak to attend, that will not be the case. You can attend whether or not you have registered to speak.

There were 14,742 women who opted-out of the class action lawsuit. Some of these were foreign claimants, but 8,133 of them were U.S. residents. Two-thirds of these US women live in Texas. As of July 21st, over 60,000 women had registered for the class action. As you know, women have until December 1st to register. Women who wish to file for any category in the disease compensation grids have until September 16th to send in their forms. 350,000 women have been sent settlement packets. Others have been distributed by attorneys, group leaders, and other women around the country. We will not know until after Sept. 16th just how many have submitted claims in the current claimant categories.

There is a rumor that the foreign claimants will tie up the class action by appealing the decision to only allow them to have 3% of the funds. We hope that this is only a rumor. For the sake of all the women who have ended up in this class action for one reason or another, I would like to see it settled as soon as possible. Dragging it out will cost more and more in attorney's fees and more women will die before they ever see a penny.

Judge Pointer made it quite clear when he was in Denver that this class action will not be decided on the wishes of the masses. He also made an unnerving statement about opt-out rights when he was speaking about whether or not the class action would hold up, which was something to the effect of: That will be decided by future opt-outs, if there are any future opt-out rights. Now, we have been warning people for a long time that this would probably become a mandatory class action. Many attorneys are warning about this also. If you opted-out and the deal starts to crater because of so many opt-outs, count on the class action becoming mandatory in exchange for more money being put into the pot. If it gets to the stage where offers are made and many, many thousands of women say "No, thanks", then look for it to become mandatory at that point. That probably would not affect the women who opted out initially, but it might if their claims had not yet been heard in court. Judge Pointer is simply not going to let this one get away from him. He will do everything in his power to make it work, and he does have the power to make this mandatory for everyone. And, to make it worse, you will probably not even be able to appeal this decision if you joined the class action and then it becomes mandatory unless you make your objections at the Fairness Hearings. If you did not register your intent to speak at this hearing by June 17th, again you are out of luck. It is important to note here that most lawsuits are not fair, and this is particularly true with class actions. The attempt is to make sure everyone gets something so that a few do not collect a lot and the rest get left out in the cold. The attempt is also to make sure that the most severely injured get the most compensation.

We are hearing rumors of a few MD's who are putting many women higher on the grid than they should be. These rumors are all about a few California doctors. These are not about the MD's we all know that are speaking at conferences and coming to speak at the group meetings. In any case, if you hear about MD's that are doing this, report them to the MDL Committee. This is important so that all women are treated fairly. If we allow fraud, women who deserve more compensation will not receive it.

Be aware that, if you have opted-out of the class action lawsuit and your trial is coming up soon, you will probably find that the defendants have hired private investigators to follow you. This happened to several women I have spoken with. Keep on your toes, be alert, pay attention, and don't do anything you don't want reported or misinterpreted in court. (If you are having an affair, give it up until after the trial!! Just kidding, folks!!!)

MEDICAL INFORMATION: You have asked where the funding for the Mayo Study came from. From CTN (Fall Issue) comes at least part of the answer. American Society of Plastic and Reconstructive Surgeons (ASPRS) $500,000, Plastic Surgery Education Foundation (an arm of the ASPRS, partly funded by Dow Corning) $300,000, American Society of Aesthetic Plastic Surgeons (ASEPS) $210,000, Dow Corning $500,000, McGhan $500,000, Mentor $500,000, Bristol- Myers Squibb $100,000, and Others (including Medical Inter-Ins Exchange, Louisiana Mutual, and the Los Angeles Society of Plastic Surgeons $9,500.

This study was not new in June of 1994 when it was presented just before the opt-out deadline. It was presented in October of 1993 at a conference for rheumatologists. It was reported on at that time. This study was retrospective and studied the records of over 700 women. As many of you have recently become aware, many of your medical records are very inaccurate and incomplete. I recently met a woman who was in that study who has had quite a few problems from her implants and she felt that her problems were brushed over by the Mayo Clinic. As we stated last month, this is akin to studies done by tobacco companies to prove smoking is not harmful. As CTN so succinctly put it, this is SCIENCE FOR HIRE. As they also remind us, it was the New England Journal of Medicine that suppressed for two full years the information about the fraud in the studies of lumpectomy for breast cancer and it is also the New England Journal of Medicine that has rejected many fine articles by experts on silicone research. They did this on the basis of a lack of editorial interest. I guess the Mayo Study has editorial interest!

From American Health, July-Aug. 1994 in the section on Medicine, an article entitled: "Saline Breast Implants May Not Be So Safe". In this article is the quote "Doctors at Mt. Sinai Med. Center in NYC recently removed 27 saline implants....from patients and examined the surrounding fibrous capsule (safety concerns have prompted thousands of women to have their implants taken out). Of the 24 saline implants that were textured, 20 had shed silicone fragments into the surrounding tissue; the three smooth implants had not shed. In addition, the fibrous tissue surrounding 18 of the textured saline implants (and one of the smooth ones) contained cells that don't occur naturally in the breast--a sign of a possible autoimmune reaction." (Editorial comment: Need I say more?)

In Houston, the Breast Institute will open in November and it will be specifically designed for the evaluation and treatment of patients with silicone exposure. If you would like to write letters of support or would like your MD to know about this clinic, you may contact Mary Beth Beard, MD, Plastic and Reconstructive Surgery, 6550 Fannin - Suite 2101, Houston, TX 77030 (713) 790-9711 or, if you would just like to know more about this upcoming clinic, contact Janie Cruise, Silicone Scene, 1050 Cinnamon Lane, Corona, CA 91720 (909) 737-7769.

A new drug for epilepsy or seizures is available. It is manufactured by Wallace Laboratories, is FDA approved and is called Felbatol. RAYNAUD'S PHENOMENON: The basic characteristic of this illness is poor blood flow to the fingers and/or toes. This seems to be triggered by exposure to cold or to any stress on the body, physical, mental, emotional, physiological, etc. It tends to recur and often worsens with time. It may occur by itself or in conjunction with other rheumatological diseases. Since there are more than 100 diseases that affect joints, muscles, ligaments, tendons, and other parts of the body, finding out just what is connected to Raynaud's is difficult. Some of these diseases are scleroderma, systemic lupus erythematosus, polymyositis/dermatomyositis, Sjogren's syndrome, and mixed connective tissue disease.

It may be helpful to explain just what does occur in a Raynaud's attack. The blood vessels in the fingers and/or toes become narrow for a short period of time and this prevents the blood flow from following its normal patterns. The fingers and/or toes therefore change color. They turn white first, then blue when the blood in the veins is depleted of oxygen, and then red (or purplish) as the blood flow returns to normal. The fingers and/or toes may only turn one of these colors. The areas affected may hurt and feel numb and cold when the blood flow is depleted to be followed by swelling, tingling, aching, burning, and warmth as the blood flow resumes. Sometimes this process takes hours, but more commonly it takes minutes.

Since exposure to cold or stress (including good stress and good emotions) tend to cause narrowing of the blood vessels, this often triggers attacks. Any vibrating equipment, including a hand-held cake mixer can cause this reaction. Generally Raynaud's attacks are sporadic and cause little if any lasting problems. Some people, however, have severe and frequent attacks of this condition. In this case, it is not wise to leave the condition untreated. Lack of treatment or progression of the disease can damage and destroy affected parts of the body. Tissue can die without constant blood flowing through the veins. In severe cases, the fingers, toes, ears or nose may feel cold to the touch, develop sores, or turn black. Surgery is sometimes necessary to remove gangrenous tissue, but this is rare. Special care must be taken to heal severely damaged areas.

Diagnosis is made by taking a medical history and sometimes placing the persons fingers or toes into ice water to see if color changes and also if changes in feeling take place. Abnormal blood vessels may be found by placing the fingernails (and fingertips) under a special microscope to look for any abnormal blood vessels. The history of the patient is the most import aspect of diagnosis. Other tests to check for rheumatological problems may be indicated.

After diagnosis, treatment is sometimes recommended. Control of the condition is the most often recommended form of treatment. Protection from the cold is the most important first step. Prevention of whole body chilling is important. Going from heat to air-conditioning can be touchy. Wearing mittens (which are warmer than gloves) to prevent hand chilling and socks (sometimes two pairs) to prevent the chilling of the feet is very important. Layering clothing and wearing natural fibers draws moisture away from your skin. Hats help retain body heat. Warm blankets are important. Be cautious in using electric blankets, especially if you have peripheral neuropathy. You can warm the bed with an electric blanket and then turn it off before getting in bed. Wear socks and gloves or mittens to bed if you tend to have cold hands and feet at night. Keep the rooms you live in most at a comfortable temperature. Don't shower in cold water and keep the room where you shower or bathe warm. Try to have someone warm up your car before you drive in cold weather. Always keep extra warm clothing on hand.

When shopping, don't reach for frozen items with bare hands. This also goes for reaching into your own freezer. Rinse or peel vegetables using lukewarm water. Wear rubber gloves to protect your hands from too hot dishwater. Avoid holding cold food items by using insulated containers or wearing gloves. Smoking narrows blood vessels, so if you smoke and have any problem with Raynaud's, you should quit immediately. Try to avoid emotional upset or situations which tend to make you very excited, nervous, or frightened. Try relaxation techniques which help reduce stress. Biofeedback can help. Certain drugs and medications can worsen symptoms of Raynaud's. Blood pressure pills are one example. Birth control pills are possibly another, as are some medications for migraine headaches. Discuss these things with your MD.

Keep your skin moist. Lanolin products help with moisture if your skin tends to dry out from loss of blood circulation. Keep it clean also, as poor circulation tends to make healing take longer. Take extra care of areas that show symptoms of Raynaud's. Take care of your nails, keeping the cuticles soft and moist. Avoid cutting cuticles. Cut hangnails instead of pulling on them. Keep track of whether pressure on your fingertips or toes increases symptoms. Move often, as movement increases blood circulation. Get as much regular exercise as you can.

If or when you have an attack, it is important to remain calm. Rewarm fingers or toes quickly. You can place you hands in your armpits or put them between your legs. Wiggle the fingers and toes, move or walk around, do anything you can to help increase your blood circulation. Run warm water (never hot) over the fingers or toes until normal color returns. Heating pads may damage sensitive skin, so be careful with them.

If you try all these conservative treatments and you still have severe problems with Raynaud's, then there are some more drastic medical treatments. Some medications help prevent the narrowing of blood vessels. A new drug called Iloprost seems to be helpful for some patients with Raynaud's. It is a vasodilator that appears to be most helpful in patients with both scleroderma and Raynaud's. Sometimes surgically blocking the nerves that cause the reactions can help. Remember, all medical and surgical interventions can have side effects.

LABS: We have heard about more rumors being spread about one of the labs we are using. Don't you think the manufacturers and their attorneys just love it when this happens. Please, folks, don't believe these rumors. Call the lab yourself and check it out. We don't need this kind of negative energy going out.

ALTERNATIVE MEDICINE: Super Blue-Green Algae is another food- supplement that can increase your alertness and energy level. Cranberry juice, when used on a daily basis, helps prevent bladder and kidney infections (see JAMA 4/94). A local woman takes cranberry capsules daily instead of drinking the juice, since you have to drink up to 10 ounces daily. Be aware that most cranberry juice is full of sugar (high fructose corn syrup) and sugar can suppress the immune system.

QUESTIONS & ANSWERS: Q. If I have already sent in my registration for the class action, can I still send in my claim for current damages by September 16th. A. Apparently you can, but check with your attorney to be sure. Q. My attorney dropped me because I would not join the class action. What can I do? A. Find another attorney. Also check to see if this is malpractice in your state. Not joining the class action should not be grounds to fire a client. You have a contract with that attorney. Q. I have von Willebrand's disease and wonder if you have heard of other women with implants who share this disorder? A. Yes, although the connection is unclear. It may be true von Willebrand's or a masquerade disease like so many others we have. Only time will tell. We seem to have other disorders that have been reported to be genetic on congenital with early onset. Interestingly, some women have shown up with it after age 30, which would certainly be rare so it would make you wonder if it was connected with implants or if the tendency was there and the implant disease process made it show up. Q. My test results seem to change drastically every time I have them done. Is this normal? A. Not unless you have had breast implants and are having health problems. Although some changes are normal, women with illnesses from breast implants often experience great changes in their symptoms as well as in their lab work.

IMPORTANT: The National Breast Implant Plaintiff's Coalition has been able to have an impact on the bill that would have given manufacturers the right to limit the amount of punitive damages that could be assessed against them. Because many of the groups in the country worked together and helped find women to support this important work, The Product Liability Fairness Act S. 687 will not be voted on this year. It was there a year ago and it will come back, so stay tuned. In any case, the efforts of this group have benefitted all victims of defective products. We thank Gail Armstrong, Joan Rice, and Barbara Herzog for their efforts as well as all those who help in this effort.

INFORMATION AVAILABLE: We have copies of the complete FDA hearing on saline implants. If you would like a copy, please send $15.00 and request the FDA Saline Hearings copies. They are 288 pages long and the other places you can order them charge $29.00 for a complete set.

PERSONAL COMMUNICATION: Sharon Smith has recently started a group in Medford, OR. Contact her at (503) 779-7097 for information about this group.

Dr. Sara Clarke, EG&G Rocky Flats, Inc., is developing as assay for the detection of IgG antibodies specific to the element silicon. To continue these studies she needs blood samples from women who have their breast implants in place, who are having health problems, and who do not have any "tooth colored" fillings. If interested please call her at (303) 966-2544.

If you have been to the Mayo Clinic for help with any illness regarding breast implants or any symptoms that later have been discovered to be caused by breast implants, please contact Linda Hilton and share your experiences with her. Her address is: 2111 Lima Center Rd., Chelsea, MI 48118. (313) 475-4674 FAX (313) 475-1977.

From C.A.T.S.: If you are mailing your breast implants and/or capsules, you should pack them right! For $50.00 (US Funds) C.A.T.S. can provide you with the proper packaging to SHIP and/or STORE explanted breast implants. Container consists of the following: 1) SPECIAL CONTAINER: FDA approved, water resistant, leak proof. 2) SPECIAL INNER PACKAGING: Plastic bags, special tape, etc. plus silicone free, sterile test tubes for blood or fluids. 3) STICKERS: FAA required. Human tissue shipped without proper markings is subject to large fines. Stickers ensure special handling during shipment. 4) COMPLETE INSTRUCTIONS: Special procedures when explanting implants and how to prepare and ship implants. 5) DISCOUNTED, PRE-PAID AIRBILL: Plus Federal Express 800# for pick-up and delivery anywhere in the world. Federal Express has given us a discounted rate so we may pass it along to you. (Hawaii, Alaska, and foreign countries including Canada may have higher shipping prices. Call first (800) CATS-199 - (800) 228-7199. Send check or money order to C.A.T.S., 60 OSER Ave. #1 Hauppauge, NY 11788. U.S. Funds only, please.

It worked for her! For information on Systemic Detoxification Program send $5 and SASE to Carol Ann Young, R.N., P.O. Box 1448, Florence, OR 97439.

THIS MONTH'S POEMS: Rhyme or Reason by Sandy of Littleton, CO (follow-up to last month's poem) A second poem streams forth only because I couldn't decide whether to rhyme or just pause. A mixture won't work, so I'll write another. This catharsis is good, it makes me feel better. I've always loved poems, they're short and concise. They discipline your thought, make your words precise. It's not fair, this illness, after all I'm a nurse, Victim of my own profession, isn't that quite a curse? My implants are gone, yes, out they came, More surgery, scars, expense, and more pain. After 20 long years with implants there My chest feels lighter, warmer, but bare. I'm a little deformed, saggy, stretched out still, But better than hard, cold, numb, always ill. At least I am natural, soft, and just me, After two kids, plus 20 pounds, I can wear a small B! Now to get well, to get on with my life, To forget and forgive this terrible strife. The fourteen lost years, too sick to function, But I've ended that path and face a new junction. A turning point, a chance to get healthy at last. I'll focus on the future, not wallow in the past. I'll make dates with my husband, talk to friends on the phone, Come out of hibernation, quit feeling so alone. Renew my relationships, my interests and such, It's been so long and I've missed out on so much! I'll have to be careful, set goals for the future, Without overdoing so as not to face failure. I'm so excited just to be thinking this way, It was all I could do just to get through the day. For years I survived without any energy For the fun things in life, just pervasive lethargy. I can feel it lifting, like a heavy shroud From around my being. I'm crying out loud. Yes! It's leaving. My God! I'm feeling alive. There's a light in the tunnel for which I can strive. GREED by T.J. of Roseville, CA How could they know and not tell And put us through this personal hell? Were the secrets and collected wealth Worth the thousands of women's health? PREVIOUS NEWSLETTER INFORMATION: Previous issues of newsletters are available for $2.00 each U.S., $3.00 Foreign, and $8.00 Professional. January 1993 is the first available issue. Please indicate months' desired and enclose $2.00 (US), $3.00 (Foreign), or $8.00 (Professional) each. Some subjects covered have been: Sjogren's (4/93); Testing (3/93): Vasculitis (4/93); Arthritis (5/93); Lupus (7/93); Chronic Fatigue (6/93); Irritable Bowel Syndrome & Inflammatory Bowel Disease (8/93); Reflex Sympathetic Dystrophy (1/94); Fibromyalgia (2/93); Auto-Immune (1/93); Insurance (8/93,9/93); Miscellaneous Medical Information (9/93,2/94); Multiple Sclerosis (10/93); Spasmodic Torticollis (10/93); Hypoglycemia (11/93); MDL 926 (9/93-5/94); Antibodies (12/93); Scleroderma (3/94); Costochondritis (4/94); Peripheral Neuropathy (4/94); Class Action (5/94); Fungal Infections (6/94) Hypocalcemia (7/94) & Legal (most issues).

DISCLAIMER: The opinions expressed here are those of the editor and any contributors and are not to be construed as medical or legal advice. Any articles or information submitted may be edited because of space, content or grammatical errors.

COPYRIGHT: Our purpose is to disseminate information and provide support. This material is copyrighted so that we may retain control over content. You may reproduce this document as long as it is not done for profit and as long as no material, including copyright and subscription information, is changed.

DONATIONS: The Coalition of Silicone Survivors is a not-for-profit, tax-exempt corporation with over 4000 members world wide. Our editor, Lynda Roth, is a survivor having heard the dread word 'cancer' followed by the reassuring 'will look like a normal breast'. In addition to having helped start many support groups, Lynda has appeared before the FDA, congress members, national TV in the US and other countries and lectures internationally. Your donation will definitely help others receive information about the dangers of implants. IF READING THIS NEWSLETTER HAS HELPED YOU, AND YOU THINK OTHERS SHOULD HAVE A CHANCE TO RECEIVE OUR MESSAGE, WE URGE YOU TO GIVE GENEROUSLY. Donations are tax deductible in the United States. Yes, I want to help

As a member you will receive a highly informative information packet and this newsletter, including the CURRENT ISSUE for the next 12 months. Remember in the US it's tax deductible. Your help is critical.

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TO: coss@siliconesurvivors.net SUBJECT: MESSAGE: subscribe silicone Smith, Alice <<<YourLastName, YourFirstName $25 <<<donation amount visa 4444 5555 6666 1234 expire 0496 <<<charge Alice B Smith <<<name on credit card happy.donor@www.anywhere.com <<<your email address www.yahoo.com <<<where you found us (303) 555-1212 <<<phone 123 Any Street Suite 12 <<<send information packet here Anytown <<<we don't share this information Co 80300 If you do not wish to send your credit card information over the net you can call (303) 499-2765 and leave a voice message with the above information. Please also leave your phone number so we can call back if your message is unclear. Checks. Don't leave this to memory. Write the check and address the envelope NOW. Silicone Survivors c/o COSS Newsletters 1705 14th St #191 Boulder, Co 80302-6265 URL http://bcn.boulder.co.us/health/silicone/silicone.html Copyright 1995 Coalition of Silicone Survivors
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